Weeks 23 and 24
In my opinion the MAPS program did not work for Isabella. I spent the last six months doing the MAPS exercises twice a day, every single day, except when she was sick and was not able to do them. Prior to MAPS, Isabella's progress was slow and it continues to be slow. She has always made progress and continues to make progress, as I noted during the last few months; however, the rate at which she learns and the things she learns and does are not different from before.
I do believe that any type of multisensory therapy is good for our kids as it stimulates all the senses; however, MAPS is very expensive for type of therapy that any parent can do right at home to stimulate their child's sense of smell, sight, hearing, touch and taste. MAPS costs $5,000 for the first 6 months and $3,000 for every six month thereafter.
The goals I set up for Isabella where to walk independently, to be seizure free, to self feed, to speak in at least 3 word sentenses, to be more at her age level cognitively, etc. In the MAPS seminars I attented prior to joinining the program, the MAPS creator had stated that the longest she had ever treated a child was for 20 months. When I joined MAPS, they gave Isabella 26 months to achieve the goals I set up for her.
The seizure protocol never worked for Isabella, even though they continue to say it is 100% effective. The program did not work for Isabella and they continue to say it is 100% effective.
The reason I decided to try MAPS was because I had attended one of their seminars and then followed the progress of a little girl with Aicardi Syndrome who did the program for 6 months. I was in touch with the mother over the 6 months her daughter did MAPS. In those 6 months, the mother claims, her daughter went from crawling to walking, from saying a couple of words to saying over 20 words, she started to selfeed, etc, etc. After hearing of those results I decided this was something I should definetely try. I called that mother recently and told her that the MAPS program had not worked on Isabella and neither had the seizure protocol. The mother stated that she does not believe the seizure protocol worked either and she is not sure why MAPS worked on her daughter, she feels that maybe any kind of multisensorial stimulation would have worked for her. Despite all of the goals her daughter reached in the 6 months, she did not continue with the MAPS program.
In conclusion, this BLOG is intended to inform and to provide my opinion based on my personal experience with my daughter. I will never discourage any parent or person that would like to try anything new on their child, specially when it is something that can not do harm and possibly do some good. In our experience MAPS was not effective for Isabella.